A Truthful and Tender Father's Day Interview With John, Ocean's Dad
This is a message of hope: parenting with Parkinson's Disease, and the rewards of watching our neurodivergent child thrive.
As we approach Father's Day, my husband and I recorded a special podcast episode. John Andrejack is not just the father of our amazing atypical child, Ocean, but also an educator and a Parkinson's Disease advocate.
We delve into parenting with chronic illness, and the beauty of seeing our children thrive despite obstacles.
This year, I want to honor my husband John, his advocacy, and all he does for our family. Watch, listen, or read…
Introduction and Parenting Philosophy
Parenting is often accompanied by feelings of regret, disappointment, and guilt. What truly matters is showing up for our kids, being present with their big feelings, and rising to the occasion. These are daily challenges, especially with John’s progressing Parkinson's Disease. Despite these challenges, John remains committed to being a responsible and engaged parent.
Meet John: Educator and Parkinson's Advocate
John Andrejack has been living with Young Onset Parkinson's Disease for nearly nine years. Diagnosed officially on July 24th, 2015, it came after years of misdiagnoses—which is a common hurdle. He volunteers with the Parkinson's Foundation and the Michael J. Fox Foundation, spreading awareness through social media and other channels. Despite these challenges, John’s involvement in our son's life remains strong and inspiring.
Parenting Challenges and Philosophies
One of our family’s highest values is honesty. (In contrast to John's upbringing) we strive to ensure that our home is one of candor as well as kindness. John knows how denial can affect a household, so he makes a conscious effort to uphold truthfulness in ours.
John’s Most Memorable Parenting Moments
Parenting a neurodivergent kid offers numerous moments of joy. Whether it's witnessing Ocean's first attempt at flying a kite or seeing him surfing with "A Walk on Water," a surf therapy organization for children with disabilities. These moments highlight the impact of parent involvement and encouragement, and the excitement of childhood achievements - on their own unique timeline.
A Walk on Water: Surf Therapy for Ocean
“A Walk on Water” is an exceptional organization that provides tandem surfing for children with special needs. Ocean has been participating for about seven or eight years now, and the joy and confidence it brings him are immeasurable. From his initial hesitation to his current enthusiasm, it’s been a journey of growth and excitement.
Parenting Mistakes and Lessons Learned
No parenting journey is without its pitfalls. One of John's significant regrets was lying to Ocean about his use of medical marijuana to manage Parkinson's symptoms, especially sleep issues. Realizing the importance of honesty, John had a heartfelt discussion and apology with Ocean, highlighting the value of being truthful and the strength that comes from repairing mistakes.
Core Values and Reflections on Fatherhood
John’s core values in parenting are grounded in responsibility and honesty. He chose to be a father, and it’s a role he takes seriously. Despite physical limitations imposed by Parkinson's Disease, he ensures that Ocean always has a responsible adult present. His dedication is evident in every decision and every memory he shares with his family
Final Thoughts and Father’s Day Wishes
When reflecting on what he wants for Father’s Day, John is content with the role he values the most—being a father. For him, the privilege of being Ocean’s dad is the gift. His perspective reminds us that sometimes, the most significant rewards are found in the everyday moments and responsibilities we willingly embrace.
Conclusion
This podcast episode offers a genuine look into our experiences as parents and partners. Our discussions cover the challenges and triumphs, the mistakes and the lessons, and most importantly, the love and radical honesty that define our family.
John’s journey with Parkinson's and his philosophy on parenting remind us that true strength lies in presence, truthfulness, and unwavering commitment to our loved ones.
As we celebrate Father’s Day, let’s honor every parent who meets life’s challenges with kindness, responsibility, and transparency.
Connect with John:
A Day In My Life With Parkinson's Disease Blog: Adimlwpd@blogspot.com
ADIMLWPD Instagram: https://www.instagram.com/adimlwpd
(I’m conscious of the binary, cisgender, heteronormative layout of my family. The whole notion of Father’s Day and Mother’s Day excludes many parents. For another perspective, see my post from last year inspired by my teacher Jacoby Ballard…)
I’m experimenting with not sharing the whole transcript here to see if anyone notices, and lighten up the word count a bit. Let me know if you want it!
If you’re seeking support this summer:
It won’t always be this hard. And you don’t have to figure it all out on our own.
I won’t tell you “exactly how to end meltdowns fast.”
I don’t have a one-size-fits-all proven method for every parenting situation.
I won’t promise to eliminate challenging behavior.
I’ll listen, and help you unpack the “why” behind whatever is happening. Together, we can make a simple plan. If we decide to work together we’ll go from there.
I’m here for you.
Private Parent Coaching Package of 6 Sessions
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